Wednesday, February 1, 2012

Quickie Zippie GS


So here it is..... Molly as been fitted for a manual wheelchair. This is a demo , which she has been practicing in at school with her therapist. We r going to get a purple one with black and her name will be in Pink script. Of course Mommy will try to bling it out a little more. She is the girlie girl in the house,maybe I can find a Dora decal or make a Dora bag to go on back. Her LLBEAN back pack will match too. I am a little sad because she is still not ambulatory but all in due time. All her rocking and rolling in her current stroller is her way of seeking movement. At school she will not really use her wheelchair because the staff walk Molly around. This chair will give her independence at home in the community and where ever we go. No more being stuck in a highchair in the kitchen waiting for Mommy or Daddy to wheel her around. I am so excited. I am nervous about the weight because I have to lift it into the back of the van and God knows I do that numerous times a day, maybe Matty and I can figure out something to make a light short ramp or something. My hopes r to hold out to 5years old or longer before we look into modifying the van for a ramp. However it might be sooner. That would be nice to do now but I hate to do something that might not be needed if she started to walk with a walker and can help us transfer to the carseat.

I tried to get her to choose a color for hr chair but she just pointed and named colors she knew. I like the purple zebra color but she is not the animal girl , Mikaela is. Mikaela is excited that she'll be able to push Molly around a little easier. Her Therapist and I decided purple because a lot of girl get pink. So now the waiting begins. 3-4 Months, about 70 days they said. I hope it goes by fast. It's like getting a new car. The next big thing is the bed. fingers crossed ..... We hope to get the Sleep Safe bed with head and foot articulation . It will be in white. I am hoping it gets approved. I feel a little weird about being excited for special needs equipment but this is our world now. i will never get use to it I will always feel like this is surreal.

Tuesday, January 31, 2012


So I think I am going to star bloggin again. I haven't been on here since Molly was DX in Dec 2009 when my world seem to end and start a new one. We have meet some amazing kids and parents along the way. My new world is turning out pretty cool. I love the mom's I meet and especially my mom's club friends they r always there ready to stand behind me in some way. I hope to blog once a month so that way I don't get over whelmed with having to blog. i hate typing and sometimes I hate even thinking about it because there is so much I want to share.
NOTE: I might not use capital I all for the sake of fast typing. so please for you anal people out there sorry. LOL

So for my first blogging of he year I am post a pic of us from. i love this crazy picture of our family, I like the self picture taking that we all do for facebook. Matt and I have been trying to take our pic like this for years and those seem to be my favorite images of us.
believe it our not i took this.. LOL ....not bad.

well here it is first blog post in almost 2 years I hopoe you enjoy following again.